Q&A: Questionare for Dr. clinic from people with fibromyalgia.?
Posted by: Alan in irritable bowel syndrome treatment, tags: clinic, fibromyalgia, From, People, QuestionareQuestion by E R: Questionare for Dr. clinic from people with fibromyalgia.?
I am getting ready to start working as a nurse again. The job I got is specifically working with people suffering with fibromyalgia. It would really help me help my patients, if anyone with fibromyalgia could answer these few questions for me…
1.) How many ‘tender’ or ‘pressure’ points out of the 18 do you have?
2.) Which pressure points are more painful for you?
3.) Is the pain in your pressure points constant?
3a.) Or only when touched or pressed?
4.) What kind of pain do you feel in your pressure points?
4a.) sharp or stabbing
4b.) dull or achy
4c.) burning or stinging
5.) Do you have pain in muscles other than pain in pressure points?
5a.) if so, where do you have the most pain?
6.) Do you experience any other symptoms like…
6a.) headaches
6b.) IBS, irritable bowel syndrome
6c.) morning stiffness
7.) Are there any other symptoms you have?
8.) What does the pain feel like in the rest of your body?
9.) What kind of pain treatments are you on if any?
10.) Is there anything that you wish your doctor or nurse would do or say to help you more?
Anything else you think I should know would greatly help. SERIOUS answers only please. Thank you for your help!
Best answer:
Answer by justmeinthisworld
1) most if not all–and more
the problem is that if you press an inch off you won’t hit it–you need to moive your finger withing a1 inch radius to be sure you have the right spot
scratching an itch can make me fall over in excrutiating pain
2) shoulders
3) the TENDERPOINTS aren’t supposed to be constant pain-mine hurt when pressed
4) severe ache
5) widespread pain is a hallmark of fms-technically to have chronic pain in all areas of tehbody (upper, lower, left, right, back, front)
I mostly have joint pain (as fms can affect ligamenst and tendons too) –down to my toes. Knees are the worst, followed by hips-with muscle soreness in arms being 3rd
6) have had migrain like headaches, stiffness though out the day (after sitting at the computer),
7) memoery problems, numbness, tingling, twitching, non restorative sleep, severe exhaustion, klutzy-hard to get my hands to do what I want (motor planning difficulties)
deep ache-sometimes sharp
9) tri cylcics, SSRI SNRI, other antidepressants, muscle relaxants, NSAIDS, narcotics, anti seizure, acupuntuncture, chiropractic, PT, pychological therapy, direct electrical stimultaion, vagus nerve stimulator, sedatives, stimulants–no pills or PT worked at all
10)
Don’t call it arthritis,inflammatory, a nutrional probelm, a pychological problem, autoimmune–it is none of these
Understand that it is a neuro disorder
Don’t label any pain from an overactive lifestyle or anotehr condition as FMS–it is it’s own condition–that while it can co occur with otehr things—is NOT a lablel for the pain of other diseases like arthritis, brain tumors, etc.
Watch out for quackery–there are many conditions that mimic FMS-such as thick body fluids or a liver problem–but that is NOT REAL FMS.
I am the boss-not you–I am paying you for a service–but I am in control-I will not bow to you. Decisions are mine-not yours
Don’t walk out of teh room whenI try to talk to you–respect my opinions.
Don’t say
“you’re fine stay active”
I’ve heard this repeatedly-when it turned out -I had anotehr condition-1st Mono, 2nd post concussive syndrome
TELL ME things–don’t assume it won’t matter to me-I have a righ to know everything-
tell me of side effects–and MONITOR for them–i have been seriously harmed by side effects that I was NOT warned of (not even on teh pharmacy pamphlet) such as passing out from by blood pressure dropping
realize that many people dioagnosedwith FMS don’t actually haveit–they have another condition–but many docs label any pain as FMS without proper diagnostics procedures
there are studies that show probloems withblood profusin intehbrain as well as differences with neurotrasmitters–
if Icould get it (and afford i) i would take viagra (I am female) to help with the brian blood profusion–there is a study of viagra’s use in CFIDS to reduce fatigue in california
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